info
Ok a Luca update I am excited to share! Luca had an amazing night, he pretty much slept the whole entire night which means I did too, which is such a win for all! He was comfortable and I could tell last night we were taking a turn in the right direction. This morning, I suggested we start weaning off all the things medicine wise so we could get an accurate picture of how he was really doing. We removed Tylenol and Motrin and his fever is gone, another big win! We took him completely off the mild sedation and within minutes he was awake and playful like you see here and I saw my boy again 🥹. I was so excited to hold him, yesterday I didn’t at all because it would take him awhile to get comfortable, once he did, I didn’t want to mess with him. So I could not wait to get him in my arms again. During rounds, the doctor suggested we turn off the high flow oxygen and see how he does, so we did the trial and he did great. We added regular oxygen and his numbers have been beautiful. With this we have been able to add back in his full regular feeds, so he is currently sleeping on me with a full belly and he’s so happy. I get a lot of questions about Luca’s breathing retractions, so I wanted to share more about it. So at Luca’s baseline he retracts. Because he had severe pulmonary hypertension for so long there is scarring on his lungs and damage that could take up to a couple of years if not more to heal. Because of this it is expected for Luca to have retractions until he is two. His lungs have been through the worst of the worst and because of that it will take awhile for them to fully heal, but they will. There is however, times when they are worse and since I know him I can easily tell when we are switching into a more severe category which is why I brought him in on Monday. His baseline is around a 5/6 and he went very quickly to an 8/9 in my opinion and then we need additional intervention. I’m pretty good at detecting that. I would put us a more of a 6 place now so we are making our way down. Luca is doing great, we have turned a corner and are for sure headed in the right direction. Appreciate you all so much 🤍 #downsyndrome #picu #adoption #foryoupage #fyp #momsoftiktok
Duration: 9 sPosted : Thu, 11 Apr 2024 21:10:40Views
40.1KDaily-
Likes
1.0KDaily-
Comments
31Daily-
Shares
3Daily-
ER
2.67%Daily-
Latest